Uganda kampala cancer registry african cancer registry network. Better data, easier access and quality benchmarking. Its abstracting capability is also ideal for reporting from physicians offices and other lowvolume reporting sources. Appraising the quality of subsaharan african cancer. Uganda kampala cancer registry registry the kampala cancer registry was established in the department of pathology of makerere faculty of medicine l now the college of health sciences, makerere university in 1951 as a populationbased cancer registry with the aim of determining cancer incidence in the population of kyadondo county. Africa to intensify cancer control through cancer registries. Kampala, uganda the independent noncommunicable diseases ncds impose a heavy burden on the ugandan population specifically the rise in the number of new cancer cases. Cancer registries in africa 2014 wiley online library. Full text full text is available as a scanned copy of the original print version.
Get a printable copy pdf file of the complete article 228k, or click on a. A large case series, collected independently of the cancer registry casefinding mechanisms, as part of a study of the influence of hiv infection on cancer risk, was used to evaluate the completeness of the registry in kampala, uganda, for the years 1994. Pdf gulu cancer registry sop, cancer registration methods. Mar 12, 2019 registry plus is a suite of publicly available free software programs for collecting and processing cancer registry data. Given possible environmental factor and ethnic diversity from the kampala city registry, gulu cancer registry was established to assess the burden of cancer in. The gulu cancer registry was established to provide information on cancer for improving the health status of the people of northern uganda through cancer notification to create interventional. We believe that data is knowledge and knowledge is power. Uganda gulu cancer registry gulu cancer registry gcr is a population based cancer registry that became operational in june 2014 with support from international network on cancer treatment and research inctr. These software programs, compliant with national standards. Cancer registries compile and provide information on the number of new cancer cases, in addition to the total number of cancer cases, as well as death and survival rates, and where cancer patients are located. Yet these are vital in planning cancer control programs. May 19 basic course on cancer registration may 2019 at kemri.
National cervical cancer prevention program, strategic plan 20122015. Screening programs, health insurance and vital statistics. These software programs, compliant with national standards, are made available by cdc to implement the national program of cancer registries npcr, established by public law 102515. Ncras mentoring committee seeks to match mentors with the most appropriate mentee based on. Our members provide treatment and screening services. Cancer registrars provide information for cancer registries which track individual patients from the time of diagnoses, with lifetime follow up, in order to create data which can be analyzed to track treatment, as well as survival and outcome information, with the goal of preventing or successfully treating cancers. Registry software seer abstracting tool seerabs allows cancer tumor registrars to collect and store data abstracted from patients medical records. Cancer registry manager, free cancer registry manager software downloads, page 3. Mentoring program national cancer registrars association. Seer is supported by the surveillance research program srp in ncis division of cancer control and population sciences dccps. First and foremost, this means managing the ordering and administration of chemotherapy drugs. A high level of completeness of casefinding is essential if data from cancer registries are to be useful for comparative studies. The ucs is now fully operational following the establishment of a new secretariat.
Complete and comprehensive oncolog delivers new levels of efficiency and compliance in terms of patient cancer data entry, patient. Uganda experienceusing cost assessment of an established. The populationbased cancer registry of kampala, uganda, has followed up the vital status of all registered cancer patients with one of the 14 most common forms of cancer, who were diagnosed and. In uganda, cancer is death breast cancer awareness month in the u. Use of a population based cancer registry to monitor trends of.
Completeness in an african cancer registry springerlink. These software programs, compliant with national standards, are made available by cdc to implement the national program of cancer registries npcr, established by. What is uganda cancer institute uci doing about cancer in uganda. The registry plus suite can be used separately or together for routine or special data collection. Mr eric chokunonga, zimbabwe national cancer registry. Cancer survival in kampala, uganda british journal of cancer. The software creates case listings and registry reports for cancer boards cancer conferences, special studies, and the annual report recommended by.
Kampala cancer registry, college of health sciences, makerere university. An oncology unit the uganda cancer institute provides chemotherapy for. Burden of cancer in kampala uganda public health fellowship. Cancer is one of the most common ncds in uganda caused by different risk factors. To critically appraise the quality of subsaharan african cancer registration systems that submitted data to globocan 2008 with respect to population coverage using publicly available information and to show the use of globocan statistics in determining global health priorities. These software programs, compliant with national standards, are made available. Annually, over 5,000 cases are registered at the uganda cancer institute uci. Registry that gathers information on cancers diagnosed within kyadondo county, uganda.
Currently, there are only two registries in uganda in kampala and gulu cancer registries. The world health organization, through the ministry of health funded the training held in may 2002 and has provided both technical and financial support to run the registry. Registry plus software programs for cancer registries cdc. Multiple quality checks incorporate the edit metafiles for on. Marys hospital lacor about 7 km west of gulu town in northern part of uganda. Adult risk factors females physical inactivity 2010 obesity 2014 household solid fuel use 2012 total 9. Advanced course to be held in september 2019 at the same venue. Case finding is by active search for cancers diagnosed in three pathology laboratories, or in six hospitals in the area, or followed up by the uganda hospice. Cancer registries and cancer genomics research in east africa. It has modules to perform data entry, quality control, consistency checks and basic analysis of the data.
The uganda cancer society is a nationwide, communitybased voluntary umbrella organization dedicated to eliminating cancers as a major health problem in uganda. Surveillance data may also serve as a foundation for cancer research and are used to plan and evaluate cancer prevention and control. Collects data from hospitals, pathology laboratories, and palliative centers. In 2008, uganda recorded 7% growth despite the global downturn and regional instability. The additional repositories can be used in a variety of ways. Oct 10, 2018 in this video i discuss trauma and cancer registries and my interest in learning more about them as a career path. Products oncolog cancer registry oncolog cancer registry is a critical tool for cancer program analysis, administrative and clinical reporting and other day to day tasks in cancer data management.
In uganda, there is an effort to undertake screening programs for. Thank you for your interest in spreading the word about the bmj. Canreg5 is an open source tool to input, store, check and analyse cancer registry data. Our product meets increasing regulatory compliance and quality assurance reporting demands. A cancer registry is an information system designed for the collection, storage, and management of data on persons with cancer registries play a critical role in cancer surveillance, which tells us where we are in the efforts to reduce the cancer burden. Cnet solutions your total cancer registry solution. The interactive database utility tool provides database administrators the ability to locate data fields for use in mining cancer registry data, which can be easily exported into data repositories. We only request your email address so that the person you are recommending the page to knows that you wanted them to see it, and that it is not junk mail. The kampala cancer registry was established in the department of pathology of makerere faculty of medicine l now the college of health sciences, makerere university in 1951 as a populationbased cancer registry with the aim of determining cancer incidence in the population of kyadondo county.
A computerized registry is more efficient than a manual registry, and the commission on cancer of the american college of surgeons now requires approved cancer programs to maintain computerized records. Registry software systems incorporate abstracted followup information into appropriate fields and files within the. The only national referral cancer centre in the country. Cancer registrars manage cancer patient databases, recording information that may be used to help detect cancer earlier. Gulu cancer registry gcr is a population based cancer registry that became operational in june 2014 with support from international network on cancer treatment and research inctr. Software and tools for cancer registries and surveillance. For kampala registry, it only covers kyadondo county.
Uganda cancer incidence agestandardized cancer mortality trends cancer mortality profile world health organization cancer country profiles, 2014. Canreg5 canreg5 is an open source tool to input, store, check and analyse cancer registry data. It has modules to do data entry, quality control, consistency checks and basic analysis of the data. This course is a practicum in cancer registry operations for handson experience in all aspects of registry organization and operation.
Cancer reporting to the texas cancer registry tcr is mandated by the texas cancer incidence reporting act, health and safety code, chapter 82 all cases of cancer diagnosed or treated in a health care facility, clinical laboratory, or by a health care practitioner as defined in section 82. The uganda cancer society ucs saves lives and creates a uganda with less cancer by bringing together all organizations in the fight against cancers in uganda. Software produced by the international agency for research on cancer in collaboration with iacr, available free to members of the association. Having been established and registered in 2011, the uganda cancer society received support from the american cancer society in 2015 to establish a functional secretariat to effectively implement cancer control programs in uganda. Survival of cervix cancer patients in kampala, uganda. Seer application programming interface api web service that provides access to various seer program data sets and algorithms. Patterns of distribution of childhood cancer in africa. May 11, 1974 full text full text is available as a scanned copy of the original print version. Get a printable copy pdf file of the complete article 228k, or click on a page image below to browse page by page. Srp provides national leadership in the science of cancer surveillance as well as analytical tools and methodological expertise in collecting, analyzing, interpreting, and disseminating reliable populationbased statistics.
Parkin dm, wabwiremangen f, nambooze s 2000 trends in cancer incidence in kyadondo county, uganda, 19601997. A cancer registry systematically collects, interprets and reports data on cancer and produces statistics to assess the impact of cancer in the community. Cancer is a highly specialized condition requiring a lot of skills. With this data, policymakers can more effectively plan services, from prevention campaigns to treatment for cancer patients. Gulu cancer registry sop, cancer registration methods and. Registry data help to identify public health priorities and enable evidencebased decision making, for example, when designing a national radiotherapy action plan. Apr 22, 2014 20 life recipient siraji obayo, md, of the uganda cancer institute, shares a closer look at the situation for patients with cancer in uganda and how the life award is helping him take steps to improve cancer care in his home country.
Cancer registry manager software free download cancer. The kampala cancer registry, located in the department of pathology at makerere medical school, registers all new cancer cases occurring among residents of kyadondo county. Feb 17, 2016 a cancer registry systematically collects, interprets and reports data on cancer and produces statistics to assess the impact of cancer in the community. Given possible environmental factor and ethnic diversity from the kampala city registry, gulu cancer registry was established to assess the burden of cancer in acholi subregion. Registry plus is a suite of publicly available free software programs for collecting and processing cancer registry data.
Software and tools for cancer registries and surveillance cdc. Planning for future cancer control programs in uganda. Uganda, officially the republic of uganda, is a landlocked country in east africa. Oncolog cancer registry is a critical tool for cancer program analysis, administrative and clinical reporting and other day to day tasks in cancer data management. Projections were based on incidence data obtained from the populationbased kampala cancer registry for the 20002014 periods, and population data was acquired from the national bureau of statistics. Which software collects cancer data securely over the public internet and is ideal for use by central cancer registries for all electronic reporting needs. This is the continuation of cancer registry clinical ii. Ugandan cancer organisations and resources cancerindex. Joinpoint software was used to study the trend and presented results using agespecific rates, agestandardized rates, crude rates, and annual. The kampala cancer registry kcr, based in the department of pathology of the makerere university college of health sciences, was established in 1954 and until recently was the only populationbased registry in uganda. Registry plus software programs for cancer registries. These emrs also have unique cancer and hematology work flows and templates, and may have applications for reporting, cancer registry and clinical trials. The kampala cancer registry covers the population of kyadondo county, which includes the city of kampala the capital of uganda and a periurban area extending approximately 30 km to the north. The kampala cancer registry covers the population of kyadondo county, which.
The cost of a national dedicated pediatric registry in africa was calculated at r. Learn more abstracting services abstracting services provides you with a staff of abstracting service. Cancer registry is an integrated collection of computer programs and routines, which work together in assisting the cancer registrars to create and maintain a cancer patient database. The registry covers the population of kyadondo county, which includes the city of kampala and its surroundings. The main improvements from the previous version are a new database engine, improved multi user capacities and development managed as an open source project. A nongovernmental organization founded by the uganda cancer institute and parents of children with. Jul 07, 2003 the kampala cancer registry, located in the department of pathology at makerere medical school, registers all new cancer cases occurring among residents of kyadondo county. It is the only established entity where cancer management is being done in the country. From case finding and abstracting to data collection and lifetime patient followup, metriq provides the solutions and tools you need while reducing operating costs. Metriq data management system coordinates your entire cancer registry process in a 247 secured data center. Metriq is the leader in cancer registry innovation by pioneering support of multistate databases. Cancer registry is a specialty of the health information technology field.
In this video i discuss trauma and cancer registries and my interest in learning more about them as a career path. Uganda and kenya were included as cancer registry controls in order to. Supervised clinical experience in performing ncrarequired cancer information management competencies in an actual registry setting. Share treatment and followup information without duplicating followup for patients at multiple facilities. Registry software systems incorporate abstracted followup information into appropriate fields and files within the system. A uk based charity raising money to support cancer treatment, education and care in uganda. More than 60% of cancer deaths occur in developing countries, but only 5% of cancer spending. The majority of residents are members of the ganda ethnic group.
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